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In Australia, we don't hear much about children with epidermolysis bullosa (EB) but about 1000 of our children suffer from this.
What is EB?
EB is a disorder that is characterised by the presence of extremely fragile skin and recurrent blister formation, resulting from minor mechanical friction or trauma.
Terms like "Butterfly children", "Crystal skin children" and "Cotton wool babies" are terms used to describe children with EB around the world.
Wikipedia states: The skin has two layers; the outer layer is called the epidermis and the inner layer the dermis. In normal individuals, there are "anchors" between the two layers that prevent them from moving independently from one another. In people born with EB, the two skin layers lack the anchors that hold them together, and any action that creates friction between the layers (like rubbing or pressure) will create blisters and painful sores. Sufferers of EB have compared the sores to third-degree burns.
Medigroup Australia and EB
Medigroup Australia has some great dressings that are extra gentle (atraumatic) for your child and antimicrobial (honey) for EB sufferers.
Links (support and help)
For epidermolysis bullosa (EB) sufferers and their families in Australia, there are a few support groups and articles from various hospitals and associations:
Links (for clinicians)
Actilite - Manuka Honey Contact Layer Dressing
Manuka Honey Impregnated Wound Contact Layer Dressing for Moist Wound Healing
Actilite is knitted viscose impregnated with medical grade Manuka wound honey designed to protect a wound, promote healing and allow the passage of exudate. Actilite is used in conjunction with a secondary dressing to absorb exudate.
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Activon Tube - Manuka Honey for Wounds
Activon Tulle - Manuka Honey Impregnated Tulle Dressing
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Activon Tulle is a BP specification knitted viscose primary dressing impregnated with an optimum volume of Activon medical grade Manuka honey for effective wound treatment.
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Advazorb Border - Foam Dressing with Soft Silicone Adherent Border
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Advazorb Border is a soft and conforming self-adherent absorbent dressing designed to absorb and retain fluid within the dressing to promote a moist wound environment beneficial to healing.
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Eclypse Adherent - highly absorbent, gentle silicone primary dressing
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Eclypse Adherent is designed to combine Eclypse exudate management technology with a Silfix® Soft Silicone Layer.
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Episil - polyurethane film dressing with soft silicone gentle layer
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Episil is an atraumatic polyurethane film dressing with Silfix® soft silicone adherence. It is designed to protect the wound whilst minimising the pain and trauma associated with dressing change.
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Episil Absorbent - self-adherent absorbent dressing with soft silicone wound contact layer
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A self-adherent absorbent dressing with a Silfix® soft silicone wound contact layer and border. The dressing has a hydrophilic foam absorbent pad with an excellent fluid handling property.
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Kelo-cote®
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Kelo-cote® is a patented topical silicone gel for the management and prevention of abnormal scars in the form of hypertrophic scars and keloids.
Kelo-cote® is unique because while it applies as a gel or spray, it transforms into true silicone sheeting on the skin.
“[Kelo-Cote® formulation] is appealing because no fixation is required; it is invisible when dry; and sun blocks, makeup, or both can be applied in combination. These features suggest that [Kelo-Cote® formulation] could currently be the most recommendable agent for scar treatment, especially in visible areas.”
Signorini M, Clementoni MT. Aesthetic Plastic Surgery 2007; 31: 183-187
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Kelo-cote® Solaire: Scar Management Gel with SPF 30 Sunscreen
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The Australian outdoor-loving lifestyle can be very harsh on the skin. Sun, sea and surf with high UV exposure can be very damaging and aging to our skin.
Built on the Kelo-cote® technology, Kelo-cote® Solaire is now boosted with in-built SPF 30 suncreen.
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Silflex
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A wound contact layer made from polyester mesh and coated with Silfix® soft silicone.
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Siltape
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Siltape is a bandaging tape designed to gently adhere to the skin without hurting the skin, which allows inspection or repositioning of wound and dressings.
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